Welcome to the
Yet one more place on the WWW for those of us living with these
diseases, and our families and friends, to find
information, solace, and encouragement.
Our goal is to provide a convenient, one-stop shopping site for FAQs,
to other sources, and anything else we can find (or that you suggest.) No
particular axes to grind, beyond the idea that suffering shared is
We're 18 1/2 YEARS OLD! That's truly ancient
by WWW standards.
BILLIONS and BILLIONS (probably trillions by now) of bytes served to
the IBD Community on the WWW since October, 1994.
Last updated 4/3/13.
The Social Security Administration has
amended the rules for
qualifying for disability. In general they have actually made it
potentially easier to qualify, by finally acknowledging problems related to
IBD being a chronic condition.
Contact AdvocacyForPatients.org for more information on this
"Know Your Rights: A Handbook for Patients
with Chronic Illness"
New 2008 Edition - A preview of the table of contents can be found
Advocacy for Patients with Chronic Illness, Inc. - and the new Handbook - will provide advice,
information and services in many areas, including but not limited to the following:
- How to get your own medical records.
- How to get and keep health insurance. EXPANDED
- How to get FREE prescription drugs. EXPANDED
- How to get health insurance coverage or financial assistance
for particular treatments, drugs, and/or therapies. EXPANDED
- How to get private disability insurance coverage.
- How to get Social Security Disability Income. EXPANDED
- How to assert your rights under the Americans with Disabilities Act.
- How to assert your rights under the Family and Medical Leave Act.
- How to ensure that schools accommodate students with chronic illnesses. EXPANDED
- How to obtain housing accomodations. NEW SECTION
- And much, much more.
- Advocacy for Patients
with Chronic Illness, Inc. is a new not-for-profit organization where
you can get free information, advice, and advocacy services from attorneys
trained to help you in areas like: getting your own medical
records; getting and keeping health insurance; getting private and Social
Security disability income; asserting your rights under the Americans with
Disabilities Act or the Family and Medical Leave Act; accomodations for
students, and lots more.
- Elizabeth's Healthy Home Cooking, by Elizabeth Garand,
is a new cookbook
with information and recipe exchanges explicitly for dealing with dietary
"peculiarities" of Chrohn's disease, diabetes, and heart disease. It is
meant to inspire, instruct, and entertain the reader. A portion of the
proceeds will be donated to promote research toward a cure for IBD.
- The US Govt Accounting Office (GAO) has published a document
entitled "SSA Actions Could Enhance Assistance to
Claimants with Inflammatory Bowel Disease and Other Impairments" which
at least on the surface seems to suggest that it may become easier to get
approval for benefits.
- The IBD Quilt Project
exists to create and enhance public awareness of Ulcerative Colitis and
Crohn's Disease via the display of the IBD Quilt panels, and to provide
IBD patients, their families and friends a creative outlet to express
their thoughts and experiences of living with a chronic disease.
an interactive support forum.
Asked Questions (with answers))
And now, for something completely different...
Exclusive (hah!) photos of Major League Baseball's
1999 AllStar Game at
Boston's Fenway Park.
Take a look at some photographs of mine.
They have nothing to do with diseases of any kind. They are, however, pleasant to
look at, which is reason enough in my mind to include them here.
One of them even
won the Grand Prize in a photo contest sponsored by businesses of Estes
Here are 1995's pictures.
We took another trip to Estes
Park and Rocky Mountain National Park. I didn't take quite so many
pictures this time (17 rolls instead of 25) because the Aspen hadn't
turned yet, and it rained a lot of the time we were there, when it wasn't
snowing. So I didn't get to do many of the trails I'd planned on.
Eventually I figured out that the challenge was to see the picture that
was there, and get it, rather than crab about the picture I wanted to take
that wasn't there.
And there are more photos from
Join the Blue
Ribbon Anti-Censorship Campaign!
These pages are (very occasionally) maintained by Bill Robertson,
and brought to you and the rest of the WWW on an Apple 1.42 GHz Mac Mini
PowerPC G4 running Mac OS Classic in OS X 10.4.10. Yes, I know, it's all
horribly outdated--antique, even--but it's all paid for and runs just
fine, thank you very much.
You can send me a mail message.
The documents contained within these WWW pages are presented expressly
for informational purposes only. In no way are any of the materials
presented here meant to be a substitute for professional medical care or
attention by a qualified practitioner, nor should they be construed as
such. ALWAYS check with your doctor if you have any questions or
concerns about your condition, or before starting a new program of
treatment. The sysop is simply a fellow IBD patient performing what he
feels to be a valuable public service, and is NOT a doctor. The
sysop is not responsible or liable, directly or indirectly, for ANY
form of damages whatsoever resulting from the use (or misuse) of
information contained in or implied by these documents.
Materials presented on these pages is copyrighted by the various authors.
Except as superseded in individual documents found here, these materials
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permission of the authors. This includes, but is not limited to,
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inclusion in commercially published compilations (books).
Otherwise you are free to copy (some of) these documents for personal use,
or to make them available for redistribution in electronic format,
1) it remains wholly unedited and unmodified,
2) no fee or compensation is charged for copies of or access to this
3) copyright notices and the accompanying disclaimers remain attached.